1 00:02:31,680 --> 00:02:34,480 Robert Steen, I love you! 2 00:02:35,160 --> 00:02:36,880 I love you more. 3 00:02:42,120 --> 00:02:46,240 Hi. Should we carry you inside? Yeah. 4 00:02:51,400 --> 00:02:56,000 You always get fussy when we're in the bathroom, don't you? 5 00:02:56,080 --> 00:02:58,320 How do I zoom in, Robert? 6 00:03:01,520 --> 00:03:04,880 With a saddle and everything! 7 00:03:21,800 --> 00:03:23,760 - Let's see. - Camera run. 8 00:03:25,440 --> 00:03:27,240 To the left or over? 9 00:03:27,320 --> 00:03:32,120 - Perhaps a bit further back? - Sure. 10 00:03:32,200 --> 00:03:35,200 This is your domain. 11 00:04:33,840 --> 00:04:36,760 {\an8}- We must go now. - But can he take the stairs? 12 00:04:36,840 --> 00:04:38,240 {\an8}He'll be fine. 13 00:04:39,160 --> 00:04:40,960 {\an8}First day of school. 14 00:04:43,040 --> 00:04:44,440 {\an8}Hold on tight. 15 00:04:51,400 --> 00:04:56,640 {\an8}It's painful to watch your child growing weaker. 16 00:04:56,720 --> 00:05:01,120 He was born with a perfectly functional body. 17 00:05:01,200 --> 00:05:06,040 Then, slowly but surely, he is robbed of everything. 18 00:05:06,120 --> 00:05:08,840 {\an8}And now... Mats! Come on up. 19 00:05:09,760 --> 00:05:12,320 {\an8}Come on up, Mats. 20 00:05:21,400 --> 00:05:23,360 {\an8}Raise your arms! 21 00:05:24,720 --> 00:05:28,920 {\an8}Every time we had to get another assistive device... 22 00:05:32,160 --> 00:05:35,240 I thought, damn it, he just lost yet another ability. 23 00:05:38,760 --> 00:05:40,280 That was rough. 24 00:05:40,360 --> 00:05:41,720 It was terrible. 25 00:05:53,080 --> 00:05:56,480 {\an8}All dreams go up in smoke. All thoughts turn dark. 26 00:05:58,960 --> 00:06:00,800 {\an8}Then you must create new dreams. 27 00:06:03,320 --> 00:06:08,880 {\an8}We simply had to try to make every day with Mats a good day. 28 00:06:12,240 --> 00:06:13,880 {\an8}- Lovely swim? - Yes. 29 00:06:13,960 --> 00:06:15,480 {\an8}Hello, Mats! 30 00:06:16,960 --> 00:06:17,960 {\an8}Hi! 31 00:06:19,160 --> 00:06:21,000 {\an8}- Are you having fun? - Yes! 32 00:06:21,080 --> 00:06:27,200 {\an8}Happy birthday to you Let us congratulate you 33 00:06:27,280 --> 00:06:28,480 {\an8}Hello, Mats! 34 00:06:30,120 --> 00:06:33,040 {\an8}- Happy birthday! - Wow, I'm dizzy. 35 00:06:33,120 --> 00:06:37,400 {\an8}- You'll never guess what it is. - I know what it is. 36 00:06:40,280 --> 00:06:41,600 {\an8}Thank you! 37 00:07:51,520 --> 00:07:53,480 - Hello. - Hello. 38 00:07:54,120 --> 00:07:58,560 We did worry about Mats spending too much time in front of his computer. 39 00:08:01,960 --> 00:08:05,400 I often tried to encourage him to go out more. 40 00:08:05,480 --> 00:08:07,280 Do things. 41 00:08:10,280 --> 00:08:11,960 There's the dog. 42 00:08:13,320 --> 00:08:15,240 Mia with the ball... 43 00:08:16,760 --> 00:08:18,560 I'll take it. 44 00:08:19,480 --> 00:08:21,480 Let's see if he can find the ball. 45 00:08:23,320 --> 00:08:28,280 Mom and Dad often took us on trips with other families. 46 00:08:33,760 --> 00:08:36,480 At first, that went very well. 47 00:08:36,560 --> 00:08:39,160 But with time, it grew more difficult. 48 00:09:07,080 --> 00:09:09,160 - Hi! - What's up? 49 00:09:09,240 --> 00:09:12,320 - We're going to a concert. - Are you excited? 50 00:09:12,400 --> 00:09:13,800 Yes, very. 51 00:09:21,000 --> 00:09:24,880 He lost touch with his friends. 52 00:09:24,960 --> 00:09:29,320 I can't remember him having any high school friends at all. 53 00:09:34,840 --> 00:09:38,400 It's difficult to live your life and find joy 54 00:09:39,160 --> 00:09:41,280 in the countless opportunities when... 55 00:09:41,360 --> 00:09:45,960 when the opportunities of a loved one grow ever more limited. 56 00:09:49,320 --> 00:09:53,000 It's midnight. Sleep well, my boy. 57 00:09:54,440 --> 00:09:56,560 Just a second. 58 00:09:56,640 --> 00:09:58,600 One last test... 59 00:09:59,280 --> 00:10:02,240 - Let's see, it's exciting. - No, no, no. 60 00:10:05,200 --> 00:10:07,080 I'll just shut it down. 61 00:10:40,960 --> 00:10:45,240 I can move backwards while doing that, see? 62 00:10:45,320 --> 00:10:47,520 - Bang, bang, then I dodge. - Yes. 63 00:10:47,600 --> 00:10:50,080 - Then shoot, like this. - I see. 64 00:10:50,920 --> 00:10:54,120 The creativity of the makers of this game... Amazing! 65 00:10:54,200 --> 00:10:58,120 - They create digital worlds. - Right. 66 00:12:26,000 --> 00:12:31,200 Our very last recording of Mats is from his uncle's wedding. 67 00:13:10,720 --> 00:13:13,920 He just fell asleep and passed away. 68 00:13:14,920 --> 00:13:16,920 And then it was over. 69 00:13:26,560 --> 00:13:30,480 One can never fully prepare for losing a child. 70 00:13:35,240 --> 00:13:39,480 Mats and I kept struggling. 71 00:13:39,560 --> 00:13:43,880 I often felt that it was all my fault... 72 00:13:44,640 --> 00:13:46,880 that he was born this way. 73 00:13:49,360 --> 00:13:52,840 Our bond was incredibly strong. 74 00:13:52,920 --> 00:13:55,640 He meant the world to me. 75 00:14:00,160 --> 00:14:04,000 It felt like time stood still for the next few days. 76 00:14:04,080 --> 00:14:08,400 We just sat on the sofa while people came and went, crying. 77 00:14:08,480 --> 00:14:09,960 It was so surreal. 78 00:14:11,520 --> 00:14:14,360 Walking past his window, seeing his things... 79 00:14:15,880 --> 00:14:18,280 Seeing his chair, empty... 80 00:14:19,240 --> 00:14:20,760 It felt terrible. 81 00:14:25,400 --> 00:14:31,880 It felt like we were sitting on top of each other for a whole day. 82 00:14:31,960 --> 00:14:35,720 We couldn't sleep, and everything was a blur. 83 00:14:35,800 --> 00:14:42,200 The second we gathered our thoughts, we realized that... 84 00:14:42,280 --> 00:14:46,920 We must tell people online that he will never log on again. 85 00:14:47,000 --> 00:14:49,440 But how on earth do we do that? 86 00:14:52,280 --> 00:14:56,920 Then Robert remembered that he had the password for Mats' blog. 87 00:14:57,000 --> 00:15:01,760 Maybe we could try that? We didn't expect it to have much of a reach, but why not? 88 00:15:04,320 --> 00:15:08,840 We sat down, and together we wrote that post. 89 00:15:31,160 --> 00:15:37,520 We sent it "out in space". We had no idea if anyone would see it. 90 00:16:10,440 --> 00:16:14,120 Then one mail after another started pouring in. 91 00:16:14,200 --> 00:16:16,320 We were dumbfounded. 92 00:16:17,920 --> 00:16:24,240 "Who are these people? Are they crazy, or what?" 93 00:16:40,960 --> 00:16:44,400 Many of them wrote quite a lot. It was unreal. 94 00:47:56,320 --> 00:47:58,680 - Mats himself! - Yes, sure. 95 00:48:09,880 --> 00:48:13,880 - It's banana and ice-cream. - It's Mia's smoothie. 96 00:53:33,680 --> 00:53:35,600 That was not nice! 97 00:53:35,680 --> 00:53:38,120 I didn't think it would come alive. 98 00:53:38,200 --> 00:53:41,000 - What are you up to? - I'm falling. 99 00:53:41,080 --> 00:53:42,760 Still? 100 00:53:42,840 --> 00:53:45,120 - I fell to the ground. - I see. 101 00:55:27,440 --> 00:55:32,960 I'll probably screw it up with Benjamin and then you and Tess have to fix it. 102 00:55:45,240 --> 00:55:48,040 - My dear boy. - Dear Mom. 103 01:10:21,320 --> 01:10:23,320 Could you press that? 104 01:26:49,240 --> 01:26:54,000 A young man in his early twenties reached out to the central office in Oslo. 105 01:27:03,520 --> 01:27:06,520 MADS' MODIFIED KEYBOARD 106 01:30:26,360 --> 01:30:29,800 {\an8}DEEPLY MISSED NEVER FORGOTTEN 107 01:30:29,880 --> 01:30:33,040 {\an8}We were planning Mats' headstone. 108 01:30:34,320 --> 01:30:36,720 {\an8}What it should read. 109 01:30:36,800 --> 01:30:40,440 {\an8}We decided to give him 110 01:30:40,520 --> 01:30:43,840 {\an8}a nice, youthful headstone. 111 01:30:45,040 --> 01:30:47,920 It would read "Mats." "Mats Steen." 112 01:31:33,520 --> 01:31:35,000 OUR DEAR SON AND BROTHER 113 01:31:35,080 --> 01:31:38,840 THANK YOU FOR THE GOOD MEMORIES YOU WILL FOREVER BE IN OUR HEARTS 114 01:31:38,920 --> 01:31:40,320 MOM, DAD AND MIA 115 01:38:50,480 --> 01:38:54,640 {\an8}DEEPLY MISSED NEVER FORGOTTEN